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We will be here with you every step of the way. We will walk with you as take this journey of possibly placing your child for adoption (link to “I want to make an adoption plan”). If you still feel like you may not be able to parent, we are here for you. If you have additional questions or just want to talk, you can contact Stephanie via voice or text at 51, or email her here. We also want to make sure you have learned about parenting a child with Down syndrome, and all of your questions about raising a child with DS have been answered. Where do we go from here? We want to make sure you are educated on Down syndrome with updated, accurate information. When you are ready for local resources and information, if you did not receive a hospital packet, contact me and I will get you in touch with your local parent group. If you have any questions along the way, contact us. Don’t overwhelm yourself read it in chunks. Take your time and learn about Down syndrome. There is a lot of information on both of these sites, so take it in chunks. If you are ready, listed below is updated, correct information at the National Down Syndrome Congress, and the National Down Syndrome Society. My husband made it back to the hospital in record time, and he was wanting to dive in head-first with educating himself on what Down syndrome was, and how this diagnosis was going to affect our son. But because individuals with Down syndrome may not have these symptoms, and because many of these symptoms are common in the general population, the health care provider will take a sample of the babys blood to confirm the diagnosis. Instead, I asked the nurse to bring my son to me. A diagnosis of Down syndrome after birth is often based initially on physical signs of the syndrome. I was not ready to open the packet…I wasn’t ready to feel the reality of what was just said to me…that my son had a permanent, life-long disability. Minutes after the doctor gave me my son’s diagnosis, a nurse came in with a “Hospital Packet” that was put together by the local Down syndrome parent group. The International Down Syndrome Coalition offers support for families in the form of various Facebook groups. The Down Syndrome Diagnosis Network is a wonderful support to families who have just received a diagnosis.
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“Welcoming a Newborn with Down Syndrome: The New Parents’ Guide to the First Month" - Download the book here at no cost to parents. There are some great resources to read during this time, and they are listed here:īaby Center offers a place for families to go and post questions anonymously, and receive support from a community of parents who have received a diagnosis of Down syndrome for their child. Reach out to us for support, we have a list of families who have been through this grieving period, who would be honored to share their story and support you during this time. Allow yourself to go through the grieving process. You’ve received heart-breaking news that your child will have a life-long, permanent disability. Time just stops and you are left with this diagnosis, and you don’t know what to do with it.įirst of all, it’s okay to grieve. The feeling of someone coming in and turning your world upside-down. I remember every word the said, I remember the feeling afterward. I was by myself after what we thought was a successful labor, my husband and parents went home to rest while I slept. I had my son at 7am, and the House Pediatrician woke me up to tell me the news. I still remember when the doctor told me my son had Down syndrome. This is a moment that you will never forget, and you will carry it with you for a lifetime. A lot of families refer to this as a “flashbulb” moment. We will provide a listening ear, answers to any of your questions, and resources along the way. We want you to know that we will walk along this journey with you, as you navigate your child’s diagnosis. Down Lyrics Verse 1 Didnt even really wanna go But if you get me out, you get a show Theres so many bodies on the floor So baby we should go and add some more Are you down, d-d-down, d-d-down. My baby buss up the silence.We are here for you. I fit to steal the keys to your heart again (your heart again)
So I write songs for you (so I write songs for you) So I write songs for you (write songs for you)
Guard them like precious money (precious money)
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